Tuesday, August 27, 2019

Jordan has started his three week Constriction Induced Movement Therapy.  He'll be casted on his right (good) arm for 3 weeks and have 3 hours of outpatient therapy per day. The hope is to re-work his brain in to using his left arm. Currently he has about 35% usage in his left arm-our hope is to get that number up, and keep it up.He's really being a trooper so far! Yesterday he had his 2 casts made (one purple and one red) and did his baseline assessment. Today he'll have water therapy, music therapy and occupational therapy. Sadly, he'll be missing preschool for the next three weeks :( . 

Em is rocking second grade. Exhausted after the first week, but loves seeing her friends more and her teachers. 








Monday, August 19, 2019

We are attempting to figure out our new normal with school, activities and doctor/therapy appointments. Now that Jordan is in school, he officially is not going to daycare (grandma and Nana are watching him after school each day)-so that's a huge blessing.  We'll figure it all out! 






Friday, August 16, 2019

We made it through the first days of school! Jordan  had his first day of preschool. He'll be going Monday-Friday in the mornings and spending his afternoons with Grandma or Nana. He loves everything about school (which we knew he would!). He is in an intervention program where half of the kids are on IEPs like him and half are "peer model" students.

Em had her first day of second grade. She loves her teacher and is ready to be back at school. 

Chris' first few days were a bit rough, but he'll be back in the swing of things! 

These littles keep growing and amazing me everyday! 


 snack time! 







Monday, August 5, 2019

Not sure where the summer has gone! We mostly wrapped up back to school shopping (Em just needs some new jumpers for school that I hope I can pick up at the used uniform sale on Sunday). Jordan is super excited about starting school, Em is kind of excited. Both kiddos got new backpacks, shoes clothes and supplies. Wahoo! 

Below is our trip to the playground (trying to tire them out before Target). And my failed photography shoot. But they're still cute! 








Monday, July 29, 2019

Jordan had round 2 of botox-he was a real champ about it! They have to put him under general anesthesia (which  is scary for mom and dad) but he seems to do really well with it. He also got fitted this week for his new AFOs (leg braces that go up his shin). They are taller than his SMOs he currently has, so I'm interested to see how he'll adjust. We'll know if a few weeks! This little man has been through a lot in his 3 years, but he is such a happy-fun-loving kid. 

Em had an awesome weekend at Nanas. Happy to have our little girl back hom! 



 





Wednesday, July 24, 2019

We had a great time on our little weekend getaway-despite the rain! Kiddos had fun petting and feeding animals and at the amusement park. It was a bummer that we could not do the water park, but we got tickets for a return visit, so we'll try to go this fall sometime. 

Jordan had his second round of Botox today, he did great. He is already so much looser on his left side and using his hand way more. It is amazing how quickly and well it works! 

Time to get in to school shopping mode! Not sure how that happened so fast! But, here we are! This weekend Em and I have a shopping date for schools shoes (oh, and likely something glittery from Claire's). Can't wait! 
 Dragon Ride
 Waiting out the rain







Daddy and Jordan 
Waiting for Botox 


Tuesday, July 16, 2019

Enjoying our summer days. 

Jo had CP clinic follow up. We'll soon be doing 3 weeks of intensive constraint therapy (basically he'll wear a cast on his good arm and have 3 hours of therapy 5 days a week and then casted 24 hours a day). We are still figuring out the logistics-but we'll make it work. They've seen HUGE improvements in "remapping" the brain for these young kiddos. Nervous but excited for him! 

Em is doing camp this week at school I think she is relieved for some structure (and Chris is relieved that he'll be able to get some work done!). 

We leave for vacation (long weekend) in a few days-can't wait. 


 Sharing a smootie at Costco
 furniture testers 

 smore time! 

School and volleyball season are in full swing. And finally fall!